Gracie's Surgery Story
This
week will mark the one year anniversary
of Gracie's surgery. I feel like so much has happened since then, Gracie got a
sister, had her 4th birthday and took her first trip to Minnesota. It's hard to
reflect back on a year ago knowing how scared and anxious I was. Thankfully she
is healthy and happy today! Many people have asked me about her surgery and
condition over the past four years - and what better platform to share it on?
Surgery day was a whirlwind. My Mom headed with us to the hospital. Gracie was
already being a trooper, she only complained about being hungry a handful of
times. It’s hard when you're three years old and don’t get to eat breakfast the
morning before your surgery! There are so many things I wish I would have known
or did before surgery day arrived. To see how we prepared Gracie for surgery
see my next blog post: Prepping Your Toddler for Surgery. When we got to the
hospital we checked in with security and got our special hospital badges. I
love that the hospital doesn't let random people roam the halls. After that
Gracie got checked in and we colored pictures for the receptionist until her
name was called. It's hard for me to recall every last detail of that day
because it feels like such a blur.
We were brought back to an area of the
hospital where Gracie got dressed in her hospital gown and socks. Each dressing
room was enclosed by windows with curtains and I remember it felt like we were
zoo animals behind the glass wall. Gracie even pretended she was a monkey
jumping up and down when the nurses would walk by, she always finds a way to
have fun. Speaking of the nurses - they were amazing! They answered all our
questions and made us feel comfortable in a very uncomfortable situation.
Gracie liked them too but mostly because they were giving her tons of stickers
for her growing collection. After what felt like forever the nurse came in with
a stack of scrubs for me so that I could walk with Gracie to the surgery room.
Gracie kissed her Granny goodbye and we headed down the hallway. In movies you
always seen stark white walls in hospitals but the halls here were filled with
whimsical images that make the circumstances not so scary. Gracie was excited
to jump on the bed and put on the anesthesia mask. Her grandpa uses a breathing
machine at night that has a mask and she was excited to be just like Pa! The
staff let her pick a flavor to breathe in and she got to paint the inside of
the mask with strawberry scent. I told her I loved her at least 100 times,
kissed her head and stroked her hair while she breathed in the strawberry scent
and fell asleep.
Thank God my Mom was able to be
there with us because I completely lost
it. My Mom was comforting and
helped with my nerves. I know we were blessed this was Gracie's only medical
obstacle and I struggled with guilt about being worried and nervous about the
surgery knowing it could be worse. Through prayer and through talking with my
Mom, I realized sadness and concern about any type of surgery is part of being
a parent of a child with any type of medical problem no matter the degree of
the problem. My Mom made sure I took care of myself, we had lunch and drank
some coffee knowing we were in for a long day ahead.
Gracie's recovery room
We waited and waited. Then we waited some more. I met with the surgeon after what felt like forever and received the news that Gracie did well during the surgery and was being transferred to her hospital room. Gracie's first round of anesthesia ended with her throwing red popsicle all over the walls making the room look like an episode of CSI. I was expecting the worst when she woke up from anesthesia this time around. To my surprise she was mostly groggy and hungry and in pain. Gracie was so happy when the nurse agreed to get her a pink popsicle to match her new Pink Pony stuffed animal. The sweet nurse brought a popsicle and Gracie immediately broke down saying "This popsicle is RED not PINK!" Granny saved the day by telling Gracie "Let's not make fun of the nurse because she doesn't know her colors yet." A little humor helped us avoid painting the walls with popsicle a second time.
The rest of that day was filled with
nurses and doctors coming in and out, taking vital signs and giving medicine.
She struggled with pain and some bladder spasms. Sleeping in a hospital is not
easy. The nurses are in your room and taking blood pressure and asking
questions every few hours. I know they were taking good care of my girl but at
5months preggo I was already having a hard time sleeping without the added
interruption. Oh well, anything for my sweet Gracie girl. In the morning Gracie
was ready to be on her feet. She was over watching movies on the giant TV, her
new books were no longer exciting and the new teddy bear was only fun for a few
hours.
Gracie had one visitor while in the hospital because I didn't want her to
be overwhelmed with guests. Lucky for us Auntie Anna brought some new
coloring and sticker books. Gracie was having a moment when Auntie Anna arrived
- when she opened the books she tossed them aside exclaiming "This isn't a real
present!" I was shocked
at the reaction. The always understanding Auntie Anna just set them to the side
and distracted Gracie in other ways. I am thankful she was able to visit in the
hospital, it gave me comfort to see a familiar face, not to mention a little
break from entertaining a 3yr old.
We stayed three days in the hospital before
we were discharged. Parents that have to stay for weeks and months at a time
endure so much and I truly admire them. We packed up our things and headed home
to finish Gracie's recovery. The doctor had told me she would heal quickly and
be back to herself in no time. I guess I didn't realize how soon that would be.
That whole weekend after her surgery I spent all my time telling her to slow
down and take it easy.
It is so crazy that all these events took place exactly one year ago. No
more daily antibiotics. No more worry, no more stress and her scar is fading
more and more by the day. Next week we have our one year follow up and our last
appointment with Gracie's doctors at Seattle Children's Hospital before our
move to Florida. She still needs yearly checkups with specialists but I think
we have come out on top! I am beyond thankful for the awesome staff at Seattle Children's that made our stay so positive. I thank God for Gracie's health every single day and can't wait to experience more adventures with my sweet girl.
Having met you guys after Gracie's surgery, I never knew she was sick. She's doing so great! This story brought tears to my eyes as I remembered the one surgery Emily had (at less than a year old). It's truly one of the hardest things to go through as a parent...but we both now have healthy, beautiful daughters.
ReplyDeletePS....Emily misses her friend.
Thanks Tammy! It's hard for me to believe she had all this going on too! The girl never skipped a beat. Gracie misses Emily too!!
ReplyDelete